Thursday was mediport installation day. Was concerned about transportation, as my normal ride was unavailable, but the end solution was better than a ride, anyway. In addition to the 9AM start for the procedure, I then had a 7 AM appointment to start chemo on Friday. Getting to UTSW from my house by 7AM means I have to get up around 5AM (if I’m going to shower, eat, and drive the 45-60 minutes, wait for valet, etc). So, instead, I booked a room a the Holiday Inn Express within walking distance of the hospital and drove and parked there on Thursday. Then, walked over to the hospital for my procedure.
They had originally said that I would only be “twilighted” for the procedure (local anesthesia and lorazepam). But, since there were concerns about keeping my airway open and also keeping me still during the procedure, they opted to knock me all the way out (fentonyl and proprofol) for a bit. I remember being wheeled down the hall, generally prepped. Then, they started pushing the fentonyl just before moving me to the procedure table. Everything is a blank until I woke up on the way back to my room.
A co-worker came over to shuttle me back to my hotel (thanks, Norma!). Our office is only 15 minutes away. I felt perfectly fine. I don’t think I talked any more unusually than normal. Even worked from the hotel room for an hour or so before laying down around 3pm for a short nap. Well, short nap being about 3 hours…I woke up and immediately realized that the lidacaine they’d used as a local anesthetic had worn off. Felt like they had come just this close to breaking my right clavicle (collar bone). Oooh, hurt to move my right arm.
I popped out to eat (it had nearly 6 hours since sedation, and I wasn’t woozy, disoriented, dizzy, forgetful, incontinent, or anything else that would inhibit my ability to drive…and it was 2 miles there and back on local roads to the restaurant so not much risk exposure). Anyway, ate well, but when I got back to the room I resorted to my very rare use of narcotic pain relievers. Took 1/2 a Vicodin and an extended-release Tylenol and vegged out until about 10 pm then slept fitfully until my 6AM alarm.
Gave me time for breakfast, a quick shower, and the short drive to the UTSW clinic to start my infusions. Since this was the beginning of cycle 1 (I’ll have 4 three-week cycles) Friday was a little over 5 hours. Started with lab draws, then some saline drip, some steroids (which made me burn a little in some rather delicate areas), and some IV Benadryl (which was like being slammed with a warm fuzzy rock…I had a private room but suspect my snoring woke up my neighbors…it sure woke me up a couple of times). Then one hour of the first cancer med (Cetuximab), 2 hours of the 2nd cancer med (Carboplatin), and they hooked me up to the pump for my 4-day infusion of Fluorouricil.
I’ll need to go back on Tuesday to have the pump removed, then will go back the next two Fridays for labs and Cetuximab only.
So far (fingers crossed) no really bad side effects to report. The clavicle pain is already subsiding. However, my taste is already being affected. In fact, it started and progressed this morning in a way I was able to directly track. I came to Starbucks and got an oatmeal and skinny vanilla latte. Oatmeal was a little less sweet than normal. The latte started out OK, but by the time I finished it, it had lost nearly all its flavor. Meh. A little metallic taste, too. As I am a saporous eater (no, not eating in my sleep…I eat more if it tastes good, otherwise have trouble forcing down bland food…not quite a hedonic eater, as I do stop eating when I feel full), I’ll have to find ways to motivate to keep enough calories going in. I’ve made it back up to 167 lbs, which is right in the range I’d like to keep it at. Won’t get too worried unless I start to drop below 160.
Hoping that work isn’t very affected. Big product launch starting, now. And a few other big projects in the works. Much of this I can do from my laptop, so if I have to miss days in the office, I can keep up with a lot from home. If there are any Summer colds going around the office, I’ve already given notice that they should not expect to see me until they burn out. That is the main reason I didn’t go into the office most of January…bad flu season, small company, so people come in sick to keep things running…but making co-workers sick who then come back in sick to keep the cycle going. I completely avoided the flu.
So, that is where things stand, for now. Hoping that my next post is not about explosive diarrhea or extreme acne (two of the most likely side effects, along with fatigue, which I can handle…always up for a nap).