Throat Blog — Good News/Bad News

So, I’ve been (im)patiently waiting to get the read from the CT scan last Wednesday. Looks like I’ll have to wait until next Wednesday to get the actual reports. But, the doctor did review the reports and gave me a summary that boils down to: “Well, I’ve got some good news, and I’ve got some bad news. Which do you want to hear first?”

So, start with the good news. No new nodules since the last CT scan 3 months ago. And, more good news, the nodules that were there 3 months ago have not gotten bigger. Untreated, they would be expected to double in size about every 3 months.

Now, to kill Pollyanna, the bad news. The nodules that were there 3 months ago have not gotten smaller, either. So, while this regimen is working, it doesn’t seem to be working quite well enough. But, that assessment is real borderline. So, I’ll do a 5th round of the current set of chemo, then will get another CT and determine what to do from there. If still no shrinkage, will probably switch to Keytruda or Opdivo.

Not looking forward particularly to another Week 1. I’m just getting over the last Week 1. I did not really realize how out of shape I’ve gotten. Mostly, I walk or sit. My most strenuous two activities are carrying my laptop into and out of the house and office and walking up the stairs to the chemo lounge on Mondays. But, yesterday I needed to review some wall art at work. These are 3×6 foot prints on a plastic film that we use at trade shows. They might weigh 1/4 pound each. Need to roll out about a dozen. This activity involves squatting down, pushing the roll so that it unrolls, then standing up and sliding the prints apart. I had to sit down to catch my breath twice. I’ve never been in this bad of physical shape. I basically did nearly nothing and it wiped me out.

So, during this week 3 I’m going to try to do some work on the exercise bike, just to get some aerobic capacity back…or maybe just keep it from getting worse. I can’t commit to doing anything next Week 1 or 2, though. On the one hand, the rash and skin effects from the Week 1 chemo have gotten progressively better (I think there isn’t much sun-damaged skin left to burn off). But, on the other hand, the added fatigue gets worse and lasts longer each time. I would have never imagined that I would actually get tired of napping.

And, with that…I think I’ll grab a small lunch and take a nap.

Guitar Gathering 2018 — Friday Workout and Johnny Hiland

Friday morning, Steve treated us to another brain workout…this time all around scales. You can get all the basic material and more from his Major Scale Mastery videos (available from his Storefront). The scales he references are in the pdf material that comes with those videos.

Then the incredibly talented Johnny Hiland spent a little over an hour playing, teaching, demonstrating, and reminiscing about guitar. Some great takeaways from his master class:

  • Guitar Playing (and practicing) should be fun)
  • The most important part of the song is the melody (seems like a duh!, but I know players who get carried away with shredding the solo and completely lose the thread of the melody…).

That doesn’t begin to touch all the high points. Watch the video…you’ll be educated, entertained, and amazed.

Throat Blog — End of the Last Week 1

Ok, I made it through my last “Week 1” 3-drug combo week. As expected, I’m more fatigued than the previous three rounds. After the dehydration of the previous round, I’m making a real effort to stay hydrated and fed, but still going to get a full bag of hydration on Monday along with my Week 2 chemo.

Fatigue, though. Bleh. Headed home very early afternoon this week, and barely hit the couch before completely zonking for 3 or 4 hours. The only one enjoying that is the cat. Until he gets bored and starts grooming me. Tiny cat licks on the face. Must be time to get up and eat something. Oh, and drink another glass of water.

I can’t really complain of feeling bad. No nausea (but little appetite, either). No real weakness. Just hard to keep my eyes open after about 2pm. Skin on my face and head looks pretty bad, today, but should slowly heal up this week.

Big thing to look forward to this week (other than naps) is a CT scan on Wednesday. This should give a very good read on whether this chemo protocol has taken care of things. Considering how bad the rash has been, everyone really thinks that it should be doing a number on the tumors, as well (generally severity of rash is positively correlated to effect on the tumors).

I realized that I don’t currently have any followup appointment scheduled for an oncologist to actually tell me the results of the CT scan…and don’t want to have to wait 8 days for the lab to release the report to me. So, emailing the Dr’s office today to set up a follow-up (or at least ask him to send me the summary as soon as he gets it).

I also want to see about getting the raw CT scan data. I don’t have the chops to be able to read it as far as the tumors go, but I can make a 3D picture that images things like cartilage and bone…if you go back to an older post, you’ll see what I was able to do with a previous CT scan (oh, I’ll just make that image the featured image for that post…no need to look for the old post). It would be nice to know what the structure of my larynx looks like, now…it feels like there is more cartilage in the front, but I really don’t know for sure. CT imaging will show it clearly.

So, forcing myself to stay awake past noon. Been working on the last of my Nashville videos (uploading now, post about that should happen later this afternoon). Planning a new video shoot of a guitarist friend, but want to wait a few weeks so that I have the stamina to get it done.