Ok, I’m about 66% through treatment and it is starting to wear on me a bit. Pretty evident from my weight chart, above, which plots from beginning of treatment to today. Rounds 1 and 2 (each round is 3 weeks, starting w/a 3-drug combo the first week, then a single drug each of the next two weeks) I got by pretty good. Appetite was a little affected (especially during the first week of each round), but recovered by the end of the round.
The first round, just had a little queasiness for a couple of days, the rash from the Erbitux, but not much else. The second round, the rash was still pretty bad (especially on my head) and I did get pretty tired by the end of the day during the first week, but the 2nd and 3rd weeks I had plenty of energy. Well, round 3 and I still have the head rash (a bit on my chest and back, too, but it doesn’t itch there, so doesn’t really bother me). But the two things most affected now are my energy levels and my appetite.
Even in the 2nd week, my energy levels were pretty low. I went to work every day, but also left early every day. I got into the early afternoon and realized that if I hung around until 5 it would not be safe for me to be driving. So, early in the week I took off around 3. Later held on until about 4. Got home and crashed in front of the TV and tried not to go to sleep too early. On the plus side, I was able to catch some great documentaries (making of National Lampoon’s Vacation…I never knew that Lindsay Buckingham did the “Holiday Road” theme song…rockumentary on The Doobie Brothers, and another on Brian Wilson).
Appetite, though. That is the worst, as not eating also affects energy levels/fatigue. I’m not nauseous, but food is unappealing when I look at it, tasteless (mostly) when I eat it, and I quickly fill up…long before the plate is empty. I can feel my appetite slowly recovering (the week 1 combo is really what drags down my appetite), but not enough to keep my weight up. As you can see from the graph, the last two weeks my weight has fallen off the cliff. Overall, about 10 lbs lost, but 5 of that has been in the past week or two.
So, I am trying to pick higher calorie (even if it also means higher sugar) options. Instead of black iced coffee in the morning, grabbing a latte. Most sweets and coffee still taste OK (but potatoes taste like sawdust, as do many other foods). I was eating oatmeal for breakfast, but it tastes so bad, now, I’ve switched to yogurt. Lunch I’m trying out a variety of soups (Udon noodle is best, but Phó is also pretty good). Dinner is the toss-up. Sometimes just a smoothie (homemade from freeze-dried then powderized banana, strawberry, kale, and broccoli). Sometimes I can manage 1/2 of an entree like lasagna or other pasta.
Even typing the above makes me feel like I want to have nothing to do with food. Ugh. I’m not even going to re-read it for typo’s and grammar tweaks.
Anyway, I really don’t feel bad. Just get tired early and often. I’m able to mostly keep up at work. My guitar practicing has suffered. The couch looks so much better than my practice area. And, keeping up this blog has suffered, as well. But, I can tell that next week will be better. I’ve already warned my office that the week of the 30th will likely be my worst week (the beginning of my last round).
So, back to editing videos from the Nashville trip. Or, maybe a nap. Well, definitely a nap.