Throat Blog — Clearing my Throat

Got my quarterly CT scan and follow up with the radiation oncologist, this week. Going in, I had a list of things to discuss. Here is the list with the results:

  • When I look down, the back of my thighs go numb
    • Pretty normal. Happens in about 30% of people who get radiation like I did. It will go away.
  • Status of Lymphedema
    • Lymphedema is gone. I have some mass of something in the front of my neck. He said it appears to be the remains of the tumor and disorganized cartilage.
  • Voice Restoration
    • No way. That “disorganized cartilage” I mentioned above is basically the front of my larynx, where the vocal chords normally anchor. There is nothing to anchor to…so I’m stuck with “throat talking.” No more singing in the shower. But, my facility in throat talking should improve somewhat, over time (a result of practice, not healing).
  • Coughing up bone
    • I had coughed up a sliver of something that appeared to be bone, twice. The second time I was able to save the chip. He looked at it and took some pics with his phone. Hmmm. Thinks it is probably just some calcified cartilage that was floating around. Nothing to worry about. My photo is attached. Actual size about 1/3″ long.
  • CT Results
    • The scan was just a soft-tissue scan of my neck (included from eyeballs to a little ways into the top of my lungs). My throat, although functionally scrambled, looks completely disease free. Yay! But, he was able to see something at the top of my lungs that he wants to follow up on with a PET scan. Not enough detail in the CT (nor was it intended to be a lung scan), so no diagnosis. Just some concern that there could be something going on. PET scheduled for ASAP…which ends up being 2 weeks from now, with a follow up with my medical oncologist a couple of days later. Hoped for a much sooner scan…hanging in limbo sucks.

So, a mix of news. Hate that my voice is gone, gone, gone. Glad that my throat is cancer-free. Concerned that there could be something going on in my lungs. Glad that if there is something going on, we’ve caught it early (my 1/31 PET scan showed my lungs as completely clear).

Here is a sidebar on how the brain works. We know that memory is imperfect. It is not a DVR, recording everything in perfect detail. Instead, we remember what we think we experienced, sometimes what we hoped we experienced, and sometimes things we never experienced. So, where am I going with this? When I recall a conversation I had yesterday, in my memory I “hear” my normal, pre-disease voice. Not the hoarse whisper that I really speak in. Pretty strange.

That’s all the news that fits, for now. Will hopefully be a quiet couple of weeks up to the PET scan.

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