Great news from my Surgical Oncologist appointment, today. The trach tube is coming out! On the one hand, this can't happen soon enough. On the other…I have an engineer coming from Tokyo next week and must be in the office to work with him. So, soon enough is delayed by a week. Since I'll need to stay in the hospital for at least 24 hours, it looks like this will get scheduled for the week of February 19.
While he's in there, he'll also be grabbing some tissue to biopsy. There are a couple of "hot spots" that showed up on the PET scan that are almost certainly just inflamed non-cancerous tissue areas, but a biopsy will provide complete certainty. Can't have too much certainty.
Looked at the pics from the PET scan, and can't believe how big the cystic areas are. Also difficult to believe that the tumor was actually much bigger than the cysts. Hoping that they go down in size over time…they do press on my vocal chords and trachea and are probably contributing to my not having any voice over a whisper. As of now, we are just going to see what time will achieve.
So, next up will be several spoonfuls of barium on Friday to see which way the food goes. I'm still 100% eating by mouth (with a little aspiration that doesn't get very far down the wrong way and is easily cough cleared). But, I'm about 95% liquid by tube. I'm hopeful that removing the trach tube will allow my throat to better mobilize and improve liquid swallowing so that I can get the stomach tube removed, too.
Looking forward to someday having only those tubes that I was born with.