Throat Blog — Good News/Bad News

So, I’ve been (im)patiently waiting to get the read from the CT scan last Wednesday. Looks like I’ll have to wait until next Wednesday to get the actual reports. But, the doctor did review the reports and gave me a summary that boils down to: “Well, I’ve got some good news, and I’ve got some bad news. Which do you want to hear first?”

So, start with the good news. No new nodules since the last CT scan 3 months ago. And, more good news, the nodules that were there 3 months ago have not gotten bigger. Untreated, they would be expected to double in size about every 3 months.

Now, to kill Pollyanna, the bad news. The nodules that were there 3 months ago have not gotten smaller, either. So, while this regimen is working, it doesn’t seem to be working quite well enough. But, that assessment is real borderline. So, I’ll do a 5th round of the current set of chemo, then will get another CT and determine what to do from there. If still no shrinkage, will probably switch to Keytruda or Opdivo.

Not looking forward particularly to another Week 1. I’m just getting over the last Week 1. I did not really realize how out of shape I’ve gotten. Mostly, I walk or sit. My most strenuous two activities are carrying my laptop into and out of the house and office and walking up the stairs to the chemo lounge on Mondays. But, yesterday I needed to review some wall art at work. These are 3×6 foot prints on a plastic film that we use at trade shows. They might weigh 1/4 pound each. Need to roll out about a dozen. This activity involves squatting down, pushing the roll so that it unrolls, then standing up and sliding the prints apart. I had to sit down to catch my breath twice. I’ve never been in this bad of physical shape. I basically did nearly nothing and it wiped me out.

So, during this week 3 I’m going to try to do some work on the exercise bike, just to get some aerobic capacity back…or maybe just keep it from getting worse. I can’t commit to doing anything next Week 1 or 2, though. On the one hand, the rash and skin effects from the Week 1 chemo have gotten progressively better (I think there isn’t much sun-damaged skin left to burn off). But, on the other hand, the added fatigue gets worse and lasts longer each time. I would have never imagined that I would actually get tired of napping.

And, with that…I think I’ll grab a small lunch and take a nap.

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