Sorry for the dearth of updates. Not a whole lot happened, despite several Dr's appointments. But, enough for a brief post, I suppose.
My medical oncologist really just did a quick review of my condition, but had no new or different insights. He did make it a point to put into his notes that keeping my trachea/natural airway was a priority. Also getting this damn thing out of my neck ASAP (but still when medically appropriate).
The highlight was the eval by my radiation oncologist. He advised that the swelling around the larynx is normal, albeit exacerbated by the irritation of having the trach tube implanted. I had some concern that it could be tumor regrowth, but he nixed that. He also said that we are still working on my goal to keep my natural airway, despite the ENT team's pessimism on that score.
Finally, evaluation for swallowing was still a downer. My muscles and tendons are still very sore and are also stretched out by the swelling in my larynx. So, I have 4 swallow exercises to practice. She advised not to even try to take in anything by mouth (except for the teaspoon quantities needed for the exercises). Re-evaluate in a couple of weeks.
This coming week I get to visit with a cardiologist (to evaluate results of a CT Angiogram I got last week) with the purpose of determining if/when I can move off of the injectable blood thinner and back to aspirin therapy. Then, I'll meet with my medical oncologist for post-op followup to the tracheostomy. My chief complaints are 1) Still have a lot of mucus generation, despite scopalomine and Robitussin and; 2) Pain/irritation of the skin under the trach tube's flange.
So, maybe another week before I update again (no update is actually a good thing…no news is good news here lately).